Crohn’s disease and other medical drivel

rabler

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I’m going to post this here since several people have been following and I’m not up for a lot of individual replies, but I’ve met some decent internet friends here. So with some nods to not over sharing I’m posting a brief update/recap.

I’ve dealt with Crohn’s disease since my early 20’s, and have run the gambit of treatments. I’ve also dealt with melanoma and prostate cancer in the last 6-7 years. That might suggest why I retired young.

This last month has been a medical challenge, still dealing with some side effects of radiation and getting that checked out (and ruling out bladder cancer). I ended up in the ER locally and was admitted and transferred to a regional hospital for bowel obstruction. After 5 fun filled days testing how much gut pain I could tolerate vs how much IV pain meds they could pump in me before suppressing my respiration, that finally cleared short of emergency surgery. I’m still recovering from that, not eating quite regularly and on some steriods to manage bowel inflammation, which brings it’s own nasty side effects. But I’m slowly improving.

I spent the last week back at the Mayo clinic in Rochester, Mn. I won’t get into potentially political topics on our country’s medical system, and the Mayo clinic is not completely without it’s issues but I do believe they still have some of the best experts in medicine. The current plan is for bowel surgery sometime this summer. I’ve had part of my illeum resected in 2004, so this is not my first ride in this rodeo. It’ll be a few rough months but I’m optimistic for another 20 years of gastronomic peace. Or at least a reduction of hostilities.

Glad I got my new shop finished last year. I can go out there and do some planning, work on a few small projects, maybe even make some progress on my bridge crane build while slogging through the recovery. Still have lots of other major projects in the queue! Just going to have to be a satisfied with slower progress for a while.
 
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Over a decade ago, I woke up from a coma that lasted three days in the hospital. The first day at the hospital, the doctors told my wife that she would be a widow. At the time, my glucose index was over 1100. After they sent me home, all I could do was do something for a half hour, then go back to bed. That is when I decided to get a lathe and later a mini-mill. It's only a 8x14, but I'll never let it go. Even if I decide to get a bigger one. Rabler, just take one day at a time and do what you can handle. Hang in there my friend, we're pulling for you. Mark
 
I also have Crohn's and have lost a piece of my tubing too- fortunately I've been pretty stable for the last decade
There's worse things one can have
-Mark
Sorry to hear you've had to deal with it. Yep, there are worse things. Crohn's has been a pain in the literal *ss. But I've survived it. Thankfully I've avoid an illeostomy or other such fun. And the newer biologics (Remicade, Humira, Stelara, etc) are getting more effective with less side effects. I shudder thinking back to the days when low dose steriods were the only maintenance treatment.
 
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Randal,

Rest now and recover from the latest bout.

Plan for how you can spend some time this summer after surgery. Line up some low physical effort, but good mental distractions to get you thru.

You have always been a voice of sound reason here, do please keep posting and helping when you can.

Brian
 
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