Need Help. Not quite sure what to do.

[savarin]

Youve already removed all wheat and seen an improvement so try removing ALL carbohydrates from your diet, get some keto stix from the pharmacist and test your urine for ketones when you have been carb free for a week.
A full on ketogenic diet does solve a heap of health problems so its worth a try for 3 - 4 weeks as nothing else appears to be working you cant lose anything. Obviously if your symptoms get worse you will quickly notice and stop.

Get rid of ALL the grains and also vegetable seed oils, use cold pressed olive oil and quality butter.
A major problem is most doctors do not believe in it and keep pushing the standard food pyramid with carbs at the top.
Animal fats DO NOT push bad cholesterol up, once all the processed foods are removed from your diet you will need to boost salt intake up to around 2 teaspoons a day through normal seasoning. That sounds a lot but WILL NOT push your blood pressure up.
Try it and keep a note, if it doesnt make things worse keep going till you get into full ketosis and see how it goes.
I had to remove all my meds, felt awesome, lost weight, diabetes into remission, brain felt sharper. no brain fog.
The all round improvement was awesome.
Its not easy, I love bread, sugar, potatoes, pasta, rice etc but it can be done and your probably halfway there already.
Good luck

 

[Larry$]

Just a thought on AZ. Might want to stay away from all the golf courses with their water soaked greens.
I've never had allergies but am diabetic and have had doctors that specialize in it that constantly adjusted insulin dosage, exercise plans etc. Finally gave up on them and kept careful records of what caused problems. Doing better now but have equipment failures fairly often. Insulin pump and glucose monitor. Hell to get old!

 

[wayback machine]

Youve already removed all wheat and seen an improvement so try removing ALL carbohydrates from your diet, get some keto stix from the pharmacist and test your urine for ketones when you have been carb free for a week.
A full on ketogenic diet does solve a heap of health problems so its worth a try for 3 - 4 weeks as nothing else appears to be working you cant lose anything. Obviously if your symptoms get worse you will quickly notice and stop.

Get rid of ALL the grains and also vegetable seed oils, use cold pressed olive oil and quality butter.
A major problem is most doctors do not believe in it and keep pushing the standard food pyramid with carbs at the top.
Animal fats DO NOT push bad cholesterol up, once all the processed foods are removed from your diet you will need to boost salt intake up to around 2 teaspoons a day through normal seasoning. That sounds a lot but WILL NOT push your blood pressure up.
Try it and keep a note, if it doesnt make things worse keep going till you get into full ketosis and see how it goes.
I had to remove all my meds, felt awesome, lost weight, diabetes into remission, brain felt sharper. no brain fog.
The all round improvement was awesome.
Its not easy, I love bread, sugar, potatoes, pasta, rice etc but it can be done and your probably halfway there already.
Good luck

This !

 

[dkemppai]

All good points. Question, for those of you who have changed diet, did you feel like garbage all the time, or only part time?

Not all days are bad. If I stay inside, or the weather is wet/rainy all day for a day or more I feel great. Snow on the ground Late November to Feburary (frozen outside) I feel great. Calm days where the wind isn't blowing AT ALL are good days too. Places that are constantly horrible are the building at work, my old truck (gone), and the heated deer blind. Everything else is a gamble. Some days are fine, others are bad.

Was asked to add gluten back to the diet for upcoming testing. Have been off for a few years now. Started it yesterday and feeling it already. This is going to be a long couple of weeks.

 

[nwfdub]

Have you tried sourcing some local honey? I have allergy problems, not as severe. Whenever allergy season rolls around, I start having a spoon of honey every day. It works wonders. Be sure not to use metal, as it destroys the enzymes that help you.

It's imperative that the source be within a 50-mile radius. The closer, the better.

Sent from my SM-G736U using Tapatalk

 

[great white]

All good points. Question, for those of you who have changed diet, did you feel like garbage all the time, or only part time?

Not all days are bad. If I stay inside, or the weather is wet/rainy all day for a day or more I feel great. Snow on the ground Late November to Feburary (frozen outside) I feel great. Calm days where the wind isn't blowing AT ALL are good days too. Places that are constantly horrible are the building at work, my old truck (gone), and the heated deer blind. Everything else is a gamble. Some days are fine, others are bad.

Was asked to add gluten back to the diet for upcoming testing. Have been off for a few years now. Started it yesterday and feeling it already. This is going to be a long couple of weeks.

Rain and snow basically "scrubs" the pollen and spores out of the air and keeps them on the ground, so not surprising. If they're not airborne you can't breath them in and set off the allergy responses.

 

[Harry Knutz]

All good points. Question, for those of you who have changed diet, did you feel like garbage all the time, or only part time?

Not all days are bad. If I stay inside, or the weather is wet/rainy all day for a day or more I feel great. Snow on the ground Late November to Feburary (frozen outside) I feel great. Calm days where the wind isn't blowing AT ALL are good days too. Places that are constantly horrible are the building at work, my old truck (gone), and the heated deer blind. Everything else is a gamble. Some days are fine, others are bad.

Was asked to add gluten back to the diet for upcoming testing. Have been off for a few years now. Started it yesterday and feeling it already. This is going to be a long couple of weeks.

As someone who has been dealing with an Autoimmune disorder for over 10 years I feel your pain. Find a practitioner who practices "Alternative Medicine" And see what they can do for you. I was almost dead last summer but have slowly gotten much better after finding out that a prescription drug I was taking was slowly killing me, I was at a point where I could hardly get up and walk. I have reduced my prescription drugs to about a third, I only take my Heart Medicines now, But I am going to slowly get rid of those too. And I have been taking supplements that have made me feel much better. I have also changed my diet, And I also take Probiotics and Digestive Enzymes.

There have been many good suggestions here, The Keto Diet and Honey are both excellent suggestions. Food is medicine!

I used to think that supplements were snake oil, They are not! They actually work. I got quite excited and started taking many supplements, But you can go broke using 30 or 40 supplements. Find out which ones give you the most benefits and take those regularly and drop the ones that don't give you any noticeable benefit, That's what I had to do. I hope you can find a solution and get better!

 

[ddickey]

Sublingual Immunotherapy | Allergy Associates of La Crosse

Allergy Associates of La Crosse helps you identify and treat the cause of your allergies through sublingual immunotherapy or allergy drops.

lacrosseallergy.com

 

[dkemppai]

Yep, This is where I'm currently going (despite 7+ hours drive each way). Dr said should start feeling better in 6-9 months. Things have not improved in 1.5yrs. Drops are making me sick.

https://lacrosseallergy.com/

So, started looking further into mold. Since that's a known tested issue. Trying to eliminate molds from everywhere. Spoke to a Dietitian, and basically found out I'm already doing almost everything right. This is because I've already figured out which foods make me ill, not surprisingly.
I can tell walking into a building, getting into a car, or entering a space if there's mold there. I am a mold detector. Light headed dizzy feeling, brain fog, confusion, weak, jittery. That can't be normal, mold is EVERYWHERE. You can't avoid it anywhere on the planet! Then add all the other known allergies, and it's just too much.

Everyone I've talked to in the last few years says, if you feel sick somewhere don't go there. So, I don't deer hunt, go outside, drive my new truck, ride in the wife's car, and this week I quit going to work. Basically prisoned in my home. Avoiding all of these helps, but isn't 'fixing' it.

Someone pointed out the book "Mold Illness: Surviving and Thriving". I'm absolutely dumbfounded. Not a single word in that book opposed my personal experience. Right down to how I do cleaning in my home, muscle spasms, or brain fog, why gluten free helps, and why I can't weight train anymore. It explained EVERY SINGLE weird episode I've had over the last 20+ years. All things that drugs, physical therapy, chiropractic, traditional Dr, Allergy treatments, lab testing and physical procedures couldn't fix or even start to explain.

It's a scientifically studied, well understood problem, with known treatments, known labs, and even genetic testing for susceptibility!

Looked for screening test, took a screening test. The results are >95% probability of having this mold illness! Finally, something. Screening test, and symptoms match so next steps are to find a Dr and try to get an official diagnosis (or not. whatever, it's a lead, so follow it).

Well, hold your horses right there partner. Find a Dr, yeah right. You'd think so. Only one Dr within driving distance (7 hours one way), and he isn't responding. Phone calls, emails, visits with anyone who I can get in with. Anyone I can talk to. No one has heard of this, or wants to learn more. Spoke to an RN (friend of a friend) many thousands of miles away. She's seen and has worked with it, but not currently working in the field but says I'm on the right track.

So, now I'm stuck in medical limbo. There's a gene test that's 98.5% good at verifying, and 99% good proving against this problem. I can't get anyone to order it. Alternative practitioners aren't taking new patients, and traditional practitioners say find an alternative practitioner. Meanwhile, continued exposure can cause physical damage to the brain, and other systems in the body.

Trying research just exactly how careful I have to be bringing things into the home. Have identified two intrusion points for mold/allergen contamination. This is because building codes don't take this into account.

Working on stopping them now, then starting reclamation of those areas. There are trained professionals who do this, but I'm stuck doing it myself. Just cleaning those two rooms is a massive undertaking, even if there weren't strict protocols to adhere to. Right now just trying to identify proper chemicals for cleaning. Concrobium Mold Control is on the list, as is a HEPA vacuum. Basically, I'm so sensitive to this stuff, if I bring a piece of paper from a contaminated environment in with me, I'll get sick next to it. Then it contaminates the area, and I continue to get sick.

So, Even with a direction foreword, there isn't a path. I still don't know what to do. I'm thrashing around like a fish out of water, throwing money I don't have, at a problem I don't know how to solve. I'm starting to regret having worked my azz off, to build a house, build a shop, collect tools and cars, hunting and fishing gear. Everything I've worked for for my whole life is getting ripped from my grasp. And I can't even get a $400 gene test ordered.

This has gotten really old.

Anyone:
Cleaning Procedures?
Cleaning Chemicals?
Best HEPA Vacuum?
Surface treatments to "Pin Down" molds/toxins allergens?
Air purifiers?
Anything else?

 

[pontiac428]

You're in the upper peninsula, which has got to be one of the worst environments for your ailment. What happens to your symptoms when you visit Nevada or Arizona? Airborne spore counts there must be 1,000x lower.

Wet wiping is the best method of removing settled particles from the environment, followed by HEPA filtration. I have been maintaining various Honeywell HEPA certified air filters in each room for as long as I've lived with my wife, who has (more socially accepted) pollen allergies. Go for a minimum of 4 air changes of room volume per hour (ACH) up to 8 ACH. For operating rooms, the standard is 12 ACH, which is extreme in cost, noise, and practicality. Electrostatic particle collectors work great, but generate a small amount of ozone, which you already identified as problematic.

If you left work, you will need a PLHCP (professionally licenced health care provider) to justify your condition in order to obtain lawful reasonable accommodation from your employer, or to transition to disability if you can't work.

I have been responsible for doing mold evaluations for all manner of government employees for well over a decade, and I will tell you right now that there is a stigma against you right off the bat. The people around you will say you are paranoid and crazy. General practitioners will sometimes not be willing to go to bat for you because the science is weak surrounding the condition. Find a specialist, even if you have to drive all the way to Minneapolis. Prepare for an uphill fight. I'm sorry it is that way, but I'm just letting you know. I've talked to dozens of people who claim mold allergies, and I've had no reason not to believe what they say, but I have never been able to support their claims with air sampling and building inspections in cases where buildings were clean, dry, and adequately maintained. It all comes down to their doctor supporting their claim in writing.

I wish you luck, and I recognize your grief over losing your favorite activities. Every one of us "saves up" in some way for future enjoyment, and I can see how this would really ruin those plans for you.